Receiving genetic health care can be a challenging, isolating experience for many people with intellectual disability. Meet the UNSW researchers who are trying to change that. Imagine walking into an appointment with your doctor. The reason for the appointment is never made clear to you. Your doctor never speaks to you directly, preferring to address the person accompanying you. Major decisions about your care are made without your input because you are not considered capable of giving informed consent.

https://www.miragenews.com/geneequal-model-of-inclusive-healthcare-for-1049374/

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