UniSA Professor Allison Cowin It's a beautiful moniker, but for Australia's 'butterfly children' it belies a devastating reality filled with enormous pain and suffering caused by a rare skin condition - Epidermolysis Bullosa (EB). Affecting more than 500,000 people worldwide - and around 1200 people in Australia - EB is a rare genetic disease that causes the skin to blister and peel at the slightest touch, leaving open wounds that may never heal and skin infections which can lead to sepsis and death.

https://www.miragenews.com/first-drug-gives-hope-to-australias-butterfly-1056663/

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